HIV sufferers rejecting free drugs
http://www.taipeitimes.com/News/world/archives/2003/11/29/2003077691
Saturday, Nov 29, 2003,Page 5
CHINA'S HEALTH CRISIS: Beijing can only afford cheaper drugs that produce
stronger side effects, resulting in a 20 percent non-compliance rate by those
in a pilot program
AFP
, DONGGUAN SOUTH VILLAGE, HENAN, CHINA
Workers check for possible flawed latex condoms on a production
line at the Dalian Latex Factory, which produces 50 million condoms
a month, in Dalian, yesterday. Some analysts estimate that China
may have 2 million to 3 million people who are HIV positive and
that the figure could reach epidemic proportions without a broad
campaign to educate the public about contraceptives.
PHOTO: EPA
Years after being infected with HIV from selling blood, poor farmers
are finally getting life-saving drugs from the government, but
many are shunning the free medication.
Unendurable side effects and fears of stigmatization
caused about 20 percent of the more than 5,000 people from nine provinces
on the pilot program to stop taking the anti-retroviral medication.
"Many stopped after one to two weeks because
the side effects were too strong," said Hu Jia, a Beijing-based AIDS activist.
In some villages, such as Dongguan in Henan Province,
farmers skip days when they cannot bear the painful side effects,
including headaches and vomiting.
Elsewhere, farmers afraid of discrimination do not
collect the medicine, which was first offered in July.
"Some patients prefer to die at home rather
than admit they're AIDS sufferers," said Zhang Fujie, head of the program run by the National Center for AIDS-STD
Control and Prevention under China's Center for Disease Control.
"They said their daughter won't be able
to marry and their son won't be able to find a wife," Zhang said.
"Some patients prefer to die at home rather
than admit they're AIDS sufferers."
Zhang Fujie, head of the program run by the National Center for
AIDS-STD Control and Prevention
International experts fear a low compliance rate due to lower quality
drugs, and that the lack of qualified doctors to help patients
stay on the medication will create dangerous, drug-resistant HIV.
"The advent of poorly monitored anti-retroviral
drug treatment virtually guarantees the emergence of a drug-resistant
HIV `superinfection' likely to spread to other parts of China, Asia
and the rest of the world," wrote Andrew Thompson, a researcher at the Center for Strategic and International
Studies in Washington.
By 2008, China hopes to provide the drugs to 40,000
people.
The program comes following years of appeals for help
by plasma donors who contracted HIV since the mid-1980s from selling
blood in unsanitary, government-approved stations.
But it is being launched when China still cannot provide
the best medicine or care.
Unable to afford the latest cocktail therapy drugs,
China is manufacturing and distributing older versions with expired
patents. But these drugs have stronger side effects, sometimes worse
than the disease's symptoms.
Patients are also not getting follow-up care from
doctors to help them change the course of the drugs and keep taking
them, the experts said. Fewer than 100 doctors in the country are
qualified to administer AIDS drugs and few work in the countryside.
"If nobody is there to say, `They will
save your life. The side effects will go away in a few days,' people
are going to say I'm not going to keep taking [them]," said an international AIDS specialist familiar with the program.
The drugs are the best China can offer for now and
are still effective, Zhang said.
The cost of treating one patient on the Chinese version
of the cocktail drug is about US$400 a year. The cost of treatment
with imported drugs is more than 10 times this amount.
But Zhang acknowledged the risks.
"If patients develop a resistance to the
drugs, that's a big worry for us," Zhang said.
In spite of the shortcomings, China seems to have
little choice but to continue the program.
"It's better to start now than wait too
long until they can do it right. Those people dying from AIDS cannot
wait," the AIDS specialist said.
Up to a million plasma donors and their loved ones
could be infected with HIV in just the worst affected province, Henan,
experts said.
But not all of the hundreds of villages suffering
from HIV-AIDS will be getting the medicine.
Provinces have usually nominated villages to receive
the drugs after they have been exposed by the media. Some officials
are reluctant to nominate other deserving villages to avoid damaging
their area's reputation, the specialist said.
In Dongguan village, Tang Suying, 48, is among 100
villagers receiving the AIDS drugs.
She stopped taking them when she became overwhelmed
by the side effects, including constant coughing, but resumed later,
remembering what happened to her husband, who died three years ago.
He and Tang sold blood for years to pay for their
children's schooling and to build their home.
"My husband was one of the earliest victims
in our village. We didn't know what he died of at the time," she said.
Most of the other villagers are sticking to the regime,
having watched too many neighbors and relatives die from AIDS.
"We're the lucky ones," several
of them said in unison.
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